The CeHA released their submission on the planned PCEHR and IHI legislation a day or so ago.
Here is the note on their web site.
The 2013 Royle Review into the PCEHR resulted in 38 recommendations. Several years and one Health Minister later, some of those recommendations are finally being pursued by the Australian Department of Health. The Consumers e-Health Alliance submitted comments on the Department of Health’s Electronic Health Records and Healthcare Identifiers: Legislation Discussion Paper released in late May 2015.
CeHA’s submission can be found here.
Here is the link:
They make some interesting points.
First they are not keen on having the Department and NEHTA planning the future rather than the new e-Health governance entity - the ACeH taking the lead and responsibility - pointing out the old group have not got far in a decade or so.
As they say
“The Consumers eHealth Alliance considers it premature for the Australian Government to contemplate legislative changes and pilots to test an opt-out national electronic health record-sharing system.
Instead, the priority should be consultation on the formation, composition and operational aspects of the proposed Australian Commission on eHealth, as this new entity should rightfully be tasked with decision-making on future PCEHR/My Health Record (MyHR) developments.
We believe the Department should engage in very broad community consultation with stakeholders, with a view to identifying people with the necessary expertise and bringing them together as a foundation body. We do not believe the Department should try to pick participants, as this approach has failed to date as is evidenced in various related reports.”
Their concluding remarks are also quite clear and pointed.
The Real Issue:- Why is eHealth so Hard ?
This question has often been raised. The answer has long been known - but continues to be avoided !
WE suggest that the key factor has been lack of governance appropriate to the task.
The nature of the required governance was clearly spelt out in the principal recommendation in the Health Online final report to Parliament in 2001.
This report and most others since have recommended the involvement of all key stakeholders in a collaborative Governance/Management structure from day one. This would bring their operating needs to immediate attention and could be promptly reconciled within a teamwork environment.
The allied aim would be to avoid a repeat of a silo mentality that so often arises when the various interest groups are kept apart rather than developing a dedicated teamwork spirit actively engaging within an integrated framework.
The Department of Health and NEHTA have been struggling for almost 11 years now, yet have produced few practical results for the cost to date.
A string of consultants' reports have found issues and concerns, and scant evidence of worthwhile implementations and outcomes despite more than $1 billion in spending.
The Royle and Deloitte consultations have confirmed this, and in their reports they recommend significant changes in governance.
We should not carry on for an extended period without speedily acting on their advice, which involves creating a teamwork structure involving all key stakeholders.
----- End Conclusion.
All in all a useful contribution that makes some very powerful points. Well worth a download and read.
My only point of difference would be is that I think you need excellent leadership as well as dramatically improved governance.